Privacy Policy

Effective Date: 1st August, 2026
Last Updated: 25th August, 2026

Bethlyn Arthur respects your privacy and is committed to protecting the personal information you provide when you visit this website, contact Bethlyn, request speaking or media engagements, submit a partnership inquiry, subscribe to communications, or otherwise interact with the website.

This Privacy Policy explains what information we collect, why we collect it, how we use and protect it, how long we retain it, and the choices and rights available to you.

This website is intended to provide information, education, advocacy, speaking, media and partnership opportunities relating to sickle cell disease, healthcare, public health and related topics.

We aim to process personal information fairly, transparently, securely and only for appropriate purposes, consistent with applicable data protection requirements, including Ghana’s Data Protection Act, 2012 (Act 843).

1. Information We Collect

The information we collect depends on how you interact with the website.

Information you provide directly

You may provide information when you:

  • Submit a contact inquiry
  • Request Bethlyn for a speaking engagement
  • Submit a media inquiry
  • Submit a partnership inquiry
  • Request information
  • Download approved resources
  • Subscribe to email communications
  • Participate in an initiative, campaign or collaboration
  • Communicate with Bethlyn or the team by email

Depending on the form or interaction, this may include:

  • Full name
  • Organization
  • Job title or role
  • Email address
  • Phone number or WhatsApp number
  • Country
  • Organization type
  • Event or programme information
  • Event dates and location
  • Partnership information
  • Media organization and programme information
  • Website or social media links
  • Audience information
  • Requested topics
  • Project objectives
  • Budget information
  • Travel requirements
  • Additional information you voluntarily provide

We only request information that is reasonably relevant to the purpose of the particular interaction.

2. Health-Related Information

Because Bethlyn’s work concerns sickle cell disease, you may voluntarily provide information relating to your health or the health of another person.

This could include information about:

  • Sickle cell disease
  • Genotype
  • Healthcare experiences
  • Pregnancy or maternal health
  • Treatment experiences
  • Patient experiences
  • Family health experiences
  • Other health-related circumstances

Please do not provide detailed medical records, laboratory results, diagnoses or other sensitive medical information unless it is genuinely necessary for the specific interaction.

Health information is treated as sensitive personal information. Ghana’s Data Protection Act specifically identifies health information as special personal data and restricts its processing except in circumstances permitted by the law, including appropriate consent or necessity.

Information submitted through this website is not a substitute for medical care or professional medical advice.

Bethlyn does not use information submitted through this website to provide individualized medical diagnosis or treatment.

3. How We Use Your Information

We may use personal information to:

  • Respond to your inquiries
  • Communicate with you about a request you have submitted
  • Review speaking requests
  • Assess media inquiries
  • Evaluate partnership proposals
  • Coordinate events and engagements
  • Provide requested resources
  • Respond to questions and feedback
  • Maintain appropriate records of professional interactions
  • Communicate about relevant initiatives you have requested information about
  • Improve the website and its content
  • Understand how visitors use the website
  • Protect the security and integrity of the website
  • Meet applicable legal or regulatory obligations

We aim to use personal information only for the purpose for which it was collected or for another compatible and lawful purpose.

The Data Protection Commission emphasizes purpose limitation, transparency, data minimization and appropriate security safeguards when personal information is processed.

4. Consent

Where we rely on your consent to process personal information, you will be given an appropriate opportunity to provide that consent.

For example, this may occur when you:

  • Submit a form containing a required consent checkbox
  • Subscribe to email communications
  • Voluntarily provide health-related information
  • Agree to participate in a campaign, interview or project

You may withdraw consent where processing is based on consent.

Withdrawal of consent does not necessarily affect processing that was already carried out lawfully before withdrawal.

The Ghana Data Protection Commission recognizes the right of individuals to give and withdraw consent.

5. Email Marketing and Communications

If you voluntarily subscribe to Bethlyn Arthur’s email communications, we may use your email address to send information such as:

  • Advocacy updates
  • Educational resources
  • Speaking announcements
  • Media updates
  • Public-health initiatives
  • Articles and insights
  • Campaign information
  • Relevant Bethlyn Arthur news

We will not assume that submitting a speaking, media, partnership or contact inquiry automatically means that you have agreed to receive marketing emails.

Where direct marketing consent is required, we will obtain it separately.

You may unsubscribe from marketing communications at any time using the unsubscribe mechanism included in the relevant email or by contacting us.

Ghana’s Data Protection Commission states that direct marketing requires prior written consent and that individuals may subsequently require their information not to be processed for direct marketing.

6. Website Analytics

We may use analytics tools to understand how visitors use the website.

Analytics information may include:

  • Pages visited
  • Approximate location
  • Device type
  • Browser type
  • Operating system
  • Referring website
  • Time spent on pages
  • General website interactions
  • Traffic sources

Analytics helps us:

  • Understand which content is useful
  • Improve website navigation
  • Identify technical problems
  • Improve accessibility and performance
  • Understand general audience engagement

Where cookies or similar technologies are used, you may be able to control them through your browser or applicable cookie settings.

We do not use analytics information to intentionally identify individual visitors unless this is necessary for a specific lawful purpose.

7. Cookies

This website may use cookies and similar technologies.

Cookies may be used to:

  • Make the website function properly
  • Remember certain preferences
  • Improve website performance
  • Understand website usage
  • Support analytics
  • Improve security

You can configure your browser to reject or delete cookies.

Disabling certain cookies may affect some website functionality.

8. Children’s Data

This website is not intended to knowingly collect personal information directly from children without appropriate involvement or consent from a parent or legal guardian where required.

Some of Bethlyn’s advocacy and educational work may concern children and young people, particularly in relation to sickle cell disease, schools and youth programmes.

Where information about a child is required for a legitimate programme, project, event, research activity or communication, appropriate safeguards will be applied.

Parents or legal guardians should contact us if they believe that information relating to a child has been submitted without appropriate authorization.

Under Ghana’s Data Protection Act, personal data relating to a child under parental control is treated as special personal data.

9. Information About Other People

If you provide information about another person—for example, a colleague, event participant, family member or child—you should only provide that information where you are authorized to do so or where you have an appropriate lawful basis for sharing it.

Please avoid providing unnecessary sensitive information about another person.

10. Sharing of Information

We do not sell your personal information.

We may disclose personal information where reasonably necessary to:

  • Respond to your request
  • Provide a service you requested
  • Coordinate an event or engagement
  • Manage website operations
  • Maintain website security
  • Provide technical or hosting services
  • Operate email communications
  • Meet legal or regulatory requirements
  • Protect the rights, safety or security of Bethlyn, visitors or others

Where third-party service providers process information on our behalf, we expect them to handle information appropriately and only for authorized purposes.

We will not publicly publish private information submitted through an inquiry form without appropriate authorization.

11. Public Stories, Interviews and Testimonials

Bethlyn’s work may involve patient stories, interviews, photographs, videos, testimonials and lived-experience accounts.

We will seek appropriate permission before publishing personally identifiable information, photographs, interviews or stories that are not already intended for public release.

Particular care will be taken with:

  • Patient stories
  • Children’s information
  • Family photographs
  • Pregnancy-related information
  • Medical experiences
  • Genotype information
  • Healthcare records
  • Other sensitive personal experiences

Consent to participate in an interview, campaign or project does not automatically mean that all information provided may be published publicly.

The intended use should be communicated separately where appropriate.

12. Data Security

We take reasonable technical and organizational measures to protect personal information against:

  • Unauthorized access
  • Loss
  • Misuse
  • Alteration
  • Unauthorized disclosure
  • Destruction

However, no website, electronic communication or storage system can be guaranteed to be completely secure.

You should avoid submitting unnecessary confidential or highly sensitive information through ordinary website forms or email.

The Data Protection Commission requires data controllers to take appropriate technical and organizational measures to protect personal data.

13. Data Retention

We retain personal information only for as long as reasonably necessary for the purpose for which it was collected, unless a longer period is required or permitted by law.

For example:

  • General inquiries: retained for as long as reasonably necessary to respond and maintain appropriate records.
  • Speaking requests: retained for event coordination and reasonable professional record-keeping.
  • Media inquiries: retained for managing the inquiry and maintaining relevant professional records.
  • Partnership inquiries: retained while the proposal is being evaluated and, where appropriate, for the duration of the resulting relationship and reasonable record-keeping.
  • Email subscriptions: retained while you remain subscribed or until you request removal, subject to necessary suppression records.
  • Analytics information: retained according to the relevant analytics provider’s settings and our operational requirements.

When information is no longer required, it may be securely deleted or anonymized.

The Ghana Data Protection Commission states that personal information should not be retained longer than necessary for the purpose for which it is processed.

14. Your Privacy Rights

Subject to applicable law, you may have rights to:

  • Know what personal information we hold about you
  • Request access to your personal information
  • Request correction of inaccurate information
  • Request deletion where appropriate
  • Object to certain processing
  • Withdraw consent where processing is based on consent
  • Request that certain processing stop
  • Object to direct marketing
  • Make a complaint about how your information is handled

15. Requests for Deletion

You may ask us to delete personal information we hold about you.

To request deletion, contact us using the details provided below and include:

  • Your name
  • Email address used when interacting with us
  • The nature of your request
  • Any relevant details that help us identify the information concerned

We will assess your request and respond in accordance with applicable data protection requirements.

Deletion may not always be possible where we are legally required to retain information or where retention is necessary for legitimate legal, security or record-keeping purposes.

Where deletion is not possible, we will explain the applicable reason where appropriate.

16. Accuracy of Information

We aim to keep personal information accurate and reasonably up to date.

If you believe information we hold about you is inaccurate, you may request that it be corrected.

17. Third-Party Links

The website may contain links to third-party websites, organizations, social-media platforms, publications, resources or services.

Once you leave the Bethlyn Arthur website, the privacy practices of the third party apply.

We are not responsible for the privacy policies, security practices or content of third-party websites.

We encourage you to review the privacy policy of any external website before providing personal information.

18. International Processing

Some website, hosting, analytics, email, communication or other service providers may process information outside Ghana.

Where personal information is transferred or processed internationally, we will seek to use appropriate safeguards and comply with applicable data protection requirements.

19. Medical and Educational Disclaimer

Information published on this website about sickle cell disease, pregnancy, maternal health, healthcare, prevention or other health-related topics is provided for educational and public-awareness purposes.

It is not individualized medical advice.

Nothing on this website should be interpreted as:

  • A medical diagnosis
  • A treatment recommendation
  • A substitute for consultation with a qualified healthcare professional
  • A guarantee of a particular medical outcome

If you have a medical concern, seek advice from an appropriately qualified healthcare professional.

20. Changes to This Privacy Policy

We may update this Privacy Policy from time to time to reflect:

  • Changes to the website
  • New services or features
  • Changes in how information is processed
  • Changes in legal or regulatory requirements
  • Improvements to our privacy practices

When we make material changes, we will update the Last Updated date at the top of this page.

We encourage visitors to review this page periodically.

21. Contact Us

If you have questions about this Privacy Policy, want to exercise your privacy rights, want to request deletion of your information, or have concerns about how your information has been handled, please contact:

Bethlyn Arthur

Email: info@bethlynarthur.com

Website: https://bethlynarthur.com/

For privacy requests, please use the subject line:

Privacy Request

We will review and respond to requests in accordance with applicable requirements.

22. Complaints

If you believe your personal information has been handled unlawfully or your privacy rights have been violated, you may first contact us so that we can investigate the matter.

You may also have the right to complain to Ghana’s Data Protection Commission, the statutory body responsible for regulating personal-data processing and protecting data-subject rights in Ghana.